Model consent clauses for rare disease research

BACKGROUND: Rare Disease research has seen tremendous advancements over the last decades, with the development of new technologies, various global collaborative efforts and improved data sharing. To maximize the impact of and to further build on these developments, there is a need for model consent...

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Detalles Bibliográficos
Autores principales: Nguyen, Minh Thu, Goldblatt, Jack, Isasi, Rosario, Jagut, Marlene, Jonker, Anneliene Hechtelt, Kaufmann, Petra, Ouillade, Laetitia, Molnar-Gabor, Fruszina, Shabani, Mahsa, Sid, Eric, Tassé, Anne Marie, Wong-Rieger, Durhane, Knoppers, Bartha Maria
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2019
Materias:
Research Article
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6676617/
https://www.ncbi.nlm.nih.gov/pubmed/31370847
http://dx.doi.org/10.1186/s12910-019-0390-x

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6676617/
https://www.ncbi.nlm.nih.gov/pubmed/31370847
http://dx.doi.org/10.1186/s12910-019-0390-x

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