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An International Validation of a Clinical Tool to Assess Carers’ Quality of Life in Huntington’s Disease

Family carers of individuals living with Huntington’s disease (HD) manage a distinct and unique series of difficulties arising from the complex nature of HD. This paper presents the validation of the definitive measure of quality of life (QoL) for this group. The Huntington’s Disease Quality of Life...

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Detalles Bibliográficos
Autores principales: Aubeeluck, Aimee, Stupple, Edward J. N., Schofield, Malcolm B., Hughes, Alis C., van der Meer, Lucienne, Landwehrmeyer, Bernhard, Ho, Aileen K.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Frontiers Media S.A. 2019
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6676956/
https://www.ncbi.nlm.nih.gov/pubmed/31402885
http://dx.doi.org/10.3389/fpsyg.2019.01658