Patient Perspectives About Decisions to Share Medical Data and Biospecimens for Research

IMPORTANCE: Patients increasingly demand transparency in and control of how their medical records and biospecimens are shared for research. How much they are willing to share and what factors influence their sharing preferences remain understudied in real settings. OBJECTIVES: To examine whether and...

Descripción completa

Detalles Bibliográficos
Autores principales: Kim, Jihoon, Kim, Hyeoneui, Bell, Elizabeth, Bath, Tyler, Paul, Paulina, Pham, Anh, Jiang, Xiaoqian, Zheng, Kai, Ohno-Machado, Lucila
Formato: Online Artículo Texto
Lenguaje:English
Publicado: American Medical Association 2019
Materias:
Original Investigation
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6707015/
https://www.ncbi.nlm.nih.gov/pubmed/31433479
http://dx.doi.org/10.1001/jamanetworkopen.2019.9550

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6707015/
https://www.ncbi.nlm.nih.gov/pubmed/31433479
http://dx.doi.org/10.1001/jamanetworkopen.2019.9550

Ejemplares similares