Cargando…
Patient Perspectives About Decisions to Share Medical Data and Biospecimens for Research
IMPORTANCE: Patients increasingly demand transparency in and control of how their medical records and biospecimens are shared for research. How much they are willing to share and what factors influence their sharing preferences remain understudied in real settings. OBJECTIVES: To examine whether and...
Autores principales: | Kim, Jihoon, Kim, Hyeoneui, Bell, Elizabeth, Bath, Tyler, Paul, Paulina, Pham, Anh, Jiang, Xiaoqian, Zheng, Kai, Ohno-Machado, Lucila |
---|---|
Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
American Medical Association
2019
|
Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6707015/ https://www.ncbi.nlm.nih.gov/pubmed/31433479 http://dx.doi.org/10.1001/jamanetworkopen.2019.9550 |
Ejemplares similares
-
Grid Binary LOgistic REgression (GLORE): building shared models without sharing data
por: Wu, Yuan, et al.
Publicado: (2012) -
Biospecimen Sharing Among Hispanic Women in a Safety-Net Clinic: Implications for the Precision Medicine Initiative
por: Nodora, Jesse N., et al.
Publicado: (2016) -
The evolving privacy and security concerns for genomic data analysis and sharing as observed from the iDASH competition
por: Kuo, Tsung-Ting, et al.
Publicado: (2022) -
Recent trends in biomedical informatics: a study based on JAMIA articles
por: Jiang, Xiaoqian, et al.
Publicado: (2013) -
Evaluating and sharing global genetic ancestry in biomedical datasets
por: Harismendy, Olivier, et al.
Publicado: (2019)