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Parental experiences with behavioural problems in Smith–Magenis syndrome: The need for syndrome-specific competence
The experience of having a rare disorder was summarised in a large study as ‘falling outside the vast field of knowledge of the professionals’. Parents (31 mothers and 17 fathers) of 32 persons with Smith–Magenis syndrome (SMS) participated in this study. A phenomenological approach was used to anal...
| Autores principales: | , , |
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| Formato: | Online Artículo Texto |
| Lenguaje: | English |
| Publicado: |
SAGE Publications
2019
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| Materias: | |
| Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6734585/ https://www.ncbi.nlm.nih.gov/pubmed/31046579 http://dx.doi.org/10.1177/1744629519847375 |