Integrating patient perspectives in medical decision-making: a qualitative interview study examining potentials within the rare disease information exchange process in practice

BACKGROUND: Many European countries have recently implemented national rare disease plans. Although the network is strengthening, especially on the macro and meso levels, patients still go a long way through healthcare systems, with many health professionals involved and scarce evidence to gather. S...

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Detalles Bibliográficos
Autores principales: Babac, Ana, von Friedrichs, Verena, Litzkendorf, Svenja, Zeidler, Jan, Damm, Kathrin, Graf von der Schulenburg, J.-Matthias
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2019
Materias:
Research Article
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6751820/
https://www.ncbi.nlm.nih.gov/pubmed/31533712
http://dx.doi.org/10.1186/s12911-019-0911-z

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6751820/
https://www.ncbi.nlm.nih.gov/pubmed/31533712
http://dx.doi.org/10.1186/s12911-019-0911-z

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