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Correlations between patient-reported outcomes and self-reported characteristics in adults with hemophilia B and caregivers of children with hemophilia B: analysis of the B-HERO-S study

PURPOSE: Pain, anxiety, depression, and other aspects of health-related quality of life (HRQoL) are important issues for people with hemophilia and caregivers of children with hemophilia. Patient-reported outcome (PRO) instruments may be used to assess aspects of HRQoL; however, the use of PROs in c...

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Detalles Bibliográficos
Autores principales: Buckner, Tyler W, Sidonio Jr, Robert, Witkop, Michelle, Guelcher, Christine, Cutter, Susan, Iyer, Neeraj N, Cooper, David L
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Dove 2019
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6755243/
https://www.ncbi.nlm.nih.gov/pubmed/31572035
http://dx.doi.org/10.2147/PROM.S219166