The Global Prader–Willi Syndrome Registry: Development, Launch, and Early Demographics

Advances in technologies offer new opportunities to collect and integrate data from a broad range of sources to advance the understanding of rare diseases and support the development of new treatments. Prader–Willi syndrome (PWS) is a rare, complex neurodevelopmental disorder, which has a variable a...

Descripción completa

Detalles Bibliográficos
Autores principales: Bohonowych, Jessica, Miller, Jennifer, McCandless, Shawn E., Strong, Theresa V.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: MDPI 2019
Materias:
Article
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6770999/
https://www.ncbi.nlm.nih.gov/pubmed/31540108
http://dx.doi.org/10.3390/genes10090713

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6770999/
https://www.ncbi.nlm.nih.gov/pubmed/31540108
http://dx.doi.org/10.3390/genes10090713

Ejemplares similares