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The Global Prader–Willi Syndrome Registry: Development, Launch, and Early Demographics

Advances in technologies offer new opportunities to collect and integrate data from a broad range of sources to advance the understanding of rare diseases and support the development of new treatments. Prader–Willi syndrome (PWS) is a rare, complex neurodevelopmental disorder, which has a variable a...

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Detalles Bibliográficos
Autores principales:	Bohonowych, Jessica, Miller, Jennifer, McCandless, Shawn E., Strong, Theresa V.
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	MDPI 2019
Materias:	Article
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6770999/ https://www.ncbi.nlm.nih.gov/pubmed/31540108 http://dx.doi.org/10.3390/genes10090713

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