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What is the best way to keep walking and moving around for individuals with Machado-Joseph disease? A scoping review through the lens of Aboriginal families with Machado-Joseph disease in the Top End of Australia

OBJECTIVES: Machado-Joseph disease (MJD) is the most common spinocerebellar ataxia worldwide. Prevalence is highest in affected remote Aboriginal communities of the Top End of Australia. Aboriginal families with MJD from Groote Eylandt believe ‘staying strong on the inside and outside’ works best to...

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Detalles Bibliográficos
Autores principales: Carr, Jennifer J, Lalara, Joyce, Lalara, Gayangwa, Smith, Moira, Quaill, Jennifer, Clough, Alan R, Lowell, Anne, Barker, Ruth N
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BMJ Publishing Group 2019
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6797313/
https://www.ncbi.nlm.nih.gov/pubmed/31575582
http://dx.doi.org/10.1136/bmjopen-2019-032092