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Rare but heard: using asynchronous virtual focus groups, interviews and roundtable discussions to create a personalised psychological intervention for primary sclerosing cholangitis: a protocol

INTRODUCTION: Primary sclerosing cholangitis (PSC) is a rare and chronic disease characterised by inflammation and fibrosis of the liver’s bile ducts. There is no known cause or cure for the illness, which often progresses to end-stage liver disease requiring liver transplantation. Symptoms of PSC c...

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Detalles Bibliográficos
Autores principales: Ranieri, Veronica, Kennedy, Eilis, Walmsley, Martine, Thorburn, Doug, McKay, Kathy
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BMJ Publishing Group 2019
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6797408/
https://www.ncbi.nlm.nih.gov/pubmed/31578198
http://dx.doi.org/10.1136/bmjopen-2019-031417