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The financial and time burden associated with phenylketonuria treatment in the United States

BACKGROUND: Phenylketonuria (PKU) imposes a substantial burden on people living with the condition and their families. However, little is known about the time cost and financial burden of having PKU or caring for a child with the condition. METHODS AND FINDINGS: Primary data were collected with a de...

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Detalles Bibliográficos
Autores principales: Rose, Angela M., Grosse, Scott D., Garcia, Sandra P., Bach, Janice, Kleyn, Mary, Simon, Norma-Jean E., Prosser, Lisa A.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Elsevier 2019
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6807265/
https://www.ncbi.nlm.nih.gov/pubmed/31660292
http://dx.doi.org/10.1016/j.ymgmr.2019.100523