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The financial and time burden associated with phenylketonuria treatment in the United States
BACKGROUND: Phenylketonuria (PKU) imposes a substantial burden on people living with the condition and their families. However, little is known about the time cost and financial burden of having PKU or caring for a child with the condition. METHODS AND FINDINGS: Primary data were collected with a de...
Autores principales: | , , , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Elsevier
2019
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6807265/ https://www.ncbi.nlm.nih.gov/pubmed/31660292 http://dx.doi.org/10.1016/j.ymgmr.2019.100523 |