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Evaluation of Outcomes and Quality of Care in Children with Sickle Cell Disease Diagnosed by Newborn Screening: A Real-World Nation-Wide Study in France

This study’s objective was to assess, on a national scale, residual risks of death, major disease-related events, and quality of care during the first five years in children diagnosed at birth with sickle cell disease (SCD). Data were retrospectively collected from medical files of all children with...

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Detalles Bibliográficos
Autores principales: Brousse, Valentine, Arnaud, Cécile, Lesprit, Emmanuelle, Quinet, Béatrice, Odièvre, Marie-Hélène, Etienne-Julan, Maryse, Guillaumat, Cécile, Elana, Gisèle, Belloy, Marie, Garnier, Nathalie, Chamouine, Abdourahim, Dumesnil, Cécile, De Montalembert, Mariane, Pondarre, Corinne, Bernaudin, Françoise, Couque, Nathalie, Boutin, Emmanuelle, Bardakjian, Josiane, Djennaoui, Fatiha, Ithier, Ghislaine, Benkerrou, Malika, Thuret, Isabelle
Formato: Online Artículo Texto
Lenguaje:English
Publicado: MDPI 2019
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6832704/
https://www.ncbi.nlm.nih.gov/pubmed/31581727
http://dx.doi.org/10.3390/jcm8101594