Incontinentia pigmenti burden scale: designing a family burden questionnaire

BACKGROUND: Incontentia pigmenti (IP) is a rare multisystem disorder of ectodermal origin comprising skin, dental, ocular and central nervous system features. Symptomatic treatments are adapted to each family according to the patient’s disability. Due to its rarity, the family IP burden in its broad...

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Detalles Bibliográficos
Autores principales: Taieb, Charles, Hadj-Rabia, Smail, Monnet, Jacques, Bennani, Mohammed, Bodemer, Christine
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2019
Materias:
Research
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6880510/
https://www.ncbi.nlm.nih.gov/pubmed/31771608
http://dx.doi.org/10.1186/s13023-019-1234-y

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6880510/
https://www.ncbi.nlm.nih.gov/pubmed/31771608
http://dx.doi.org/10.1186/s13023-019-1234-y

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