Marfan syndrome in adolescence: adolescents’ perspectives on (physical) functioning, disability, contextual factors and support needs

Although essential for providing optimal adolescent patient support, knowledge of the impact of Marfan syndrome in adolescence is limited. To explore adolescents’ perceived impact of Marfan syndrome on (physical) functioning (activities, participation), disability (limitations, restrictions), contex...

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Detalles Bibliográficos
Autores principales: Warnink-Kavelaars, Jessica, Beelen, Anita, Goedhart, Tine M. H. J., de Koning, Lisanne E., Nollet, Frans, Alsem, Mattijs W., Menke, Leonie A., Engelbert, Raoul H. H.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Springer Berlin Heidelberg 2019
Materias:
Original Article
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6881250/
https://www.ncbi.nlm.nih.gov/pubmed/31620888
http://dx.doi.org/10.1007/s00431-019-03469-7

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6881250/
https://www.ncbi.nlm.nih.gov/pubmed/31620888
http://dx.doi.org/10.1007/s00431-019-03469-7

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