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“My Life is Spoiled Because of Him…” A Qualitative Study of Human Immunodeficiency Virus Disclosure and Male Involvement in Prevention of Mother-to-Child Transmission Program

BACKGROUND: India has the third largest human immunodeficiency virus (HIV) epidemic in the world, with 15,000 newborns infected every year. Prevention of mother-to-child transmission (PMTCT) services can eliminate new HIV infections. Nondisclosure of positive HIV status and nonoptimal uptake of PMTC...

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Autores principales: Modi, Anjali, Kosambiya, Jayendrakumar K, Trivedi, Sangita, Chaudhari, Vipul P, Mehta, Alap, Wells, Kristen J
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Wolters Kluwer - Medknow 2019
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6881897/
https://www.ncbi.nlm.nih.gov/pubmed/31802793
http://dx.doi.org/10.4103/ijcm.IJCM_366_18
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author Modi, Anjali
Kosambiya, Jayendrakumar K
Trivedi, Sangita
Chaudhari, Vipul P
Mehta, Alap
Wells, Kristen J
author_facet Modi, Anjali
Kosambiya, Jayendrakumar K
Trivedi, Sangita
Chaudhari, Vipul P
Mehta, Alap
Wells, Kristen J
author_sort Modi, Anjali
collection PubMed
description BACKGROUND: India has the third largest human immunodeficiency virus (HIV) epidemic in the world, with 15,000 newborns infected every year. Prevention of mother-to-child transmission (PMTCT) services can eliminate new HIV infections. Nondisclosure of positive HIV status and nonoptimal uptake of PMTCT are related. Therefore, understanding different aspects of HIV disclosure are necessary for program managers and careproviders for prevention and support. OBJECTIVE: The present research explores HIV disclosure narratives, the family's perspective, and theoretical framework in the context of PMTCT. METHODS: A qualitative study was conducted among 31 (16 mothers and 15 fathers) utilizers of PMTCT at an urban antiretroviral therapy center. A semi-structured in-depth interview guide based on disclosure process model (DPM) was used to explore HIV disclosure goals and outcomes by both members of parental dyad. The recorded interviews were transcribed verbatim, translated into English, and analyzed with Atlas.ti software. Directed content analysis was used to code data according to “a priori” and emerging themes. Demographic data were analyzed using descriptive statistics. RESULTS: Limited disclosure is a necessity for pregnant women and their male partners for approach coping with HIV diagnosis and pursuing positive support for PMTCT adherence. Interpersonal, society, and community contextual outcomes affect the care uptake and future likelihood of disclosure. CONCLUSIONS: DPM suggestions from the present study can be used to facilitate a goal-directed process that allows parents/PLWHA to selectively disclose their HIV status to family members and acquaintances for obtaining maximum support to eliminate newborn HIV infections while minimizing distress, stigma, and discrimination.
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spelling pubmed-68818972019-12-04 “My Life is Spoiled Because of Him…” A Qualitative Study of Human Immunodeficiency Virus Disclosure and Male Involvement in Prevention of Mother-to-Child Transmission Program Modi, Anjali Kosambiya, Jayendrakumar K Trivedi, Sangita Chaudhari, Vipul P Mehta, Alap Wells, Kristen J Indian J Community Med Original Article BACKGROUND: India has the third largest human immunodeficiency virus (HIV) epidemic in the world, with 15,000 newborns infected every year. Prevention of mother-to-child transmission (PMTCT) services can eliminate new HIV infections. Nondisclosure of positive HIV status and nonoptimal uptake of PMTCT are related. Therefore, understanding different aspects of HIV disclosure are necessary for program managers and careproviders for prevention and support. OBJECTIVE: The present research explores HIV disclosure narratives, the family's perspective, and theoretical framework in the context of PMTCT. METHODS: A qualitative study was conducted among 31 (16 mothers and 15 fathers) utilizers of PMTCT at an urban antiretroviral therapy center. A semi-structured in-depth interview guide based on disclosure process model (DPM) was used to explore HIV disclosure goals and outcomes by both members of parental dyad. The recorded interviews were transcribed verbatim, translated into English, and analyzed with Atlas.ti software. Directed content analysis was used to code data according to “a priori” and emerging themes. Demographic data were analyzed using descriptive statistics. RESULTS: Limited disclosure is a necessity for pregnant women and their male partners for approach coping with HIV diagnosis and pursuing positive support for PMTCT adherence. Interpersonal, society, and community contextual outcomes affect the care uptake and future likelihood of disclosure. CONCLUSIONS: DPM suggestions from the present study can be used to facilitate a goal-directed process that allows parents/PLWHA to selectively disclose their HIV status to family members and acquaintances for obtaining maximum support to eliminate newborn HIV infections while minimizing distress, stigma, and discrimination. Wolters Kluwer - Medknow 2019 /pmc/articles/PMC6881897/ /pubmed/31802793 http://dx.doi.org/10.4103/ijcm.IJCM_366_18 Text en Copyright: © 2019 Indian Journal of Community Medicine http://creativecommons.org/licenses/by-nc-sa/4.0 This is an open access journal, and articles are distributed under the terms of the Creative Commons Attribution-NonCommercial-ShareAlike 4.0 License, which allows others to remix, tweak, and build upon the work non-commercially, as long as appropriate credit is given and the new creations are licensed under the identical terms.
spellingShingle Original Article
Modi, Anjali
Kosambiya, Jayendrakumar K
Trivedi, Sangita
Chaudhari, Vipul P
Mehta, Alap
Wells, Kristen J
“My Life is Spoiled Because of Him…” A Qualitative Study of Human Immunodeficiency Virus Disclosure and Male Involvement in Prevention of Mother-to-Child Transmission Program
title “My Life is Spoiled Because of Him…” A Qualitative Study of Human Immunodeficiency Virus Disclosure and Male Involvement in Prevention of Mother-to-Child Transmission Program
title_full “My Life is Spoiled Because of Him…” A Qualitative Study of Human Immunodeficiency Virus Disclosure and Male Involvement in Prevention of Mother-to-Child Transmission Program
title_fullStr “My Life is Spoiled Because of Him…” A Qualitative Study of Human Immunodeficiency Virus Disclosure and Male Involvement in Prevention of Mother-to-Child Transmission Program
title_full_unstemmed “My Life is Spoiled Because of Him…” A Qualitative Study of Human Immunodeficiency Virus Disclosure and Male Involvement in Prevention of Mother-to-Child Transmission Program
title_short “My Life is Spoiled Because of Him…” A Qualitative Study of Human Immunodeficiency Virus Disclosure and Male Involvement in Prevention of Mother-to-Child Transmission Program
title_sort “my life is spoiled because of him…” a qualitative study of human immunodeficiency virus disclosure and male involvement in prevention of mother-to-child transmission program
topic Original Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6881897/
https://www.ncbi.nlm.nih.gov/pubmed/31802793
http://dx.doi.org/10.4103/ijcm.IJCM_366_18
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