Return of genetic and genomic research findings: experience of a pediatric biorepository

BACKGROUND: Assess process, uptake, validity and resource needs for return of actionable research findings to biobank participants. METHODS: Participants were prospectively enrolled in a multicenter biorepository of childhood onset heart disease. Clinically actionable research findings were reviewed...

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Detalles Bibliográficos
Autores principales: Papaz, Tanya, Liston, Eriskay, Zahavich, Laura, Stavropoulos, Dimitri J., Jobling, Rebekah K., Kim, Raymond H., Reuter, Miriam, Miron, Anastasia, Oechslin, Erwin, Mondal, Tapas, Bergin, Lynn, Smythe, John F., Altamirano-Diaz, Luis, Lougheed, Jane, Yao, Roderick, Akinrinade, Oyediran, Breckpot, Jeroen, Mital, Seema
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2019
Materias:
Research Article
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6882371/
https://www.ncbi.nlm.nih.gov/pubmed/31775751
http://dx.doi.org/10.1186/s12920-019-0618-0

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6882371/
https://www.ncbi.nlm.nih.gov/pubmed/31775751
http://dx.doi.org/10.1186/s12920-019-0618-0

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