Engaging a community to enable disease-centric data sharing with the NF Data Portal

A significant challenge facing rare disease communities is finding a sufficient quantity and variety of data to develop and test disease-specific hypotheses. Here we describe an approach to data sharing in which stakeholders from the neurofibromatosis (NF) research community collaborated to develop...

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Detalles Bibliográficos
Autores principales: Allaway, Robert J., La Rosa, Salvatore, Verma, Sharad, Mangravite, Lara, Guinney, Justin, Blakeley, Jaishri, Bakker, Annette, Gosline, Sara J. C.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Nature Publishing Group UK 2019
Materias:
Comment
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6910996/
https://www.ncbi.nlm.nih.gov/pubmed/31836719
http://dx.doi.org/10.1038/s41597-019-0317-x

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6910996/
https://www.ncbi.nlm.nih.gov/pubmed/31836719
http://dx.doi.org/10.1038/s41597-019-0317-x

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