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Engaging a community to enable disease-centric data sharing with the NF Data Portal
A significant challenge facing rare disease communities is finding a sufficient quantity and variety of data to develop and test disease-specific hypotheses. Here we describe an approach to data sharing in which stakeholders from the neurofibromatosis (NF) research community collaborated to develop...
| Autores principales: | , , , , , , , |
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| Formato: | Online Artículo Texto |
| Lenguaje: | English |
| Publicado: |
Nature Publishing Group UK
2019
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| Materias: | |
| Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6910996/ https://www.ncbi.nlm.nih.gov/pubmed/31836719 http://dx.doi.org/10.1038/s41597-019-0317-x |