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Exploring the Views of Osteogenesis Imperfecta Caregivers on Internet-Based Technologies: Qualitative Descriptive Study

BACKGROUND: Osteogenesis imperfecta (OI) is a rare genetic condition that can lead to frequent debilitating bone fractures. Family caregivers of children with OI face unique challenges in providing care, which may include limited access to information about the condition, feelings of distress, and e...

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Detalles Bibliográficos
Autores principales: Castro, Aimee R, Chougui, Khadidja, Bilodeau, Claudette, Tsimicalis, Argerie
Formato: Online Artículo Texto
Lenguaje:English
Publicado: JMIR Publications 2019
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6939279/
https://www.ncbi.nlm.nih.gov/pubmed/31850851
http://dx.doi.org/10.2196/15924