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Regulating the Secondary Use of Data for Research: Arguments Against Genetic Exceptionalism

As accessing, collecting, and storing personal information become increasingly easier, the secondary use of data has the potential to make healthcare research more cost and time effective. The widespread reuse of data, however, raises important ethical and policy issues, especially because of the se...

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Detalles Bibliográficos
Autores principales: Martani, Andrea, Geneviève, Lester Darryl, Pauli-Magnus, Christiane, McLennan, Stuart, Elger, Bernice Simone
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Frontiers Media S.A. 2019
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6951399/
https://www.ncbi.nlm.nih.gov/pubmed/31956328
http://dx.doi.org/10.3389/fgene.2019.01254