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Education and information needs for physicians about rare diseases in Spain

BACKGROUND: Rare diseases are a priority objective for public health systems. Given its complexity, late and misdiagnoses occur very often which causes mental and physical burden for patients and family. This would be caused, in part, for unprepared clinicians in this field. The aim of this study wa...

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Detalles Bibliográficos
Autores principales: Ramalle-Gómara, Enrique, Domínguez-Garrido, Elena, Gómez-Eguílaz, María, Marzo-Sola, María Eugenia, Ramón-Trapero, José Luis, Gil-de-Gómez, Josefa
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2020
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6969468/
https://www.ncbi.nlm.nih.gov/pubmed/31952528
http://dx.doi.org/10.1186/s13023-019-1285-0