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A telehealth approach to improving clinical trial access for infants with tuberous sclerosis complex

BACKGROUND: Research in rare genetic syndromes associated with ASD is often hampered by the wide geographic distribution of families and the presence of medical comorbidities, such as epilepsy, that may preclude travel to clinical sites. These challenges can limit the sample size and generalizabilit...

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Detalles Bibliográficos
Autores principales: Hyde, Carly, Pizzano, Maria, McDonald, Nicole M., Nelson, Charles A., Kasari, Connie, Thiele, Elizabeth A., Jeste, Shafali S.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2020
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6977334/
https://www.ncbi.nlm.nih.gov/pubmed/31969108
http://dx.doi.org/10.1186/s11689-019-9302-0