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A telehealth approach to improving clinical trial access for infants with tuberous sclerosis complex
BACKGROUND: Research in rare genetic syndromes associated with ASD is often hampered by the wide geographic distribution of families and the presence of medical comorbidities, such as epilepsy, that may preclude travel to clinical sites. These challenges can limit the sample size and generalizabilit...
Autores principales: | Hyde, Carly, Pizzano, Maria, McDonald, Nicole M., Nelson, Charles A., Kasari, Connie, Thiele, Elizabeth A., Jeste, Shafali S. |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
BioMed Central
2020
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6977334/ https://www.ncbi.nlm.nih.gov/pubmed/31969108 http://dx.doi.org/10.1186/s11689-019-9302-0 |
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