Exploring the Burden of X-Linked Hypophosphataemia: An Opportunistic Qualitative Study of Patient Statements Generated During a Technology Appraisal

INTRODUCTION: Capturing the patient experience of living with a rare disease such as X-linked hypophosphataemia (XLH) is critical for a holistic understanding of the burden of a disease. The complexity of the disease coupled with the limited population makes elicitation of the patient burden methodo...

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Detalles Bibliográficos
Autores principales: Ferizović, Nermina, Marshall, Jade, Williams, Angela E., Mughal, M. Zulf, Shaw, Nicholas, Mak, Catherine, Gardiner, Oliver, Hossain, Pushpa, Upadhyaya, Sheela
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Springer Healthcare 2019
Materias:
Original Research
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7004427/
https://www.ncbi.nlm.nih.gov/pubmed/31865548
http://dx.doi.org/10.1007/s12325-019-01193-0

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7004427/
https://www.ncbi.nlm.nih.gov/pubmed/31865548
http://dx.doi.org/10.1007/s12325-019-01193-0

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