Parents of Newborns in the NICU Enrolled in Genome Sequencing Research: Hopeful, but Not Naïve

PURPOSE: In 2014, our institution launched a randomized control trial (RCT) comparing rapid genome sequencing (GS) to standard clinical evaluations of infants with suspected genetic disorders. This study aimed to understand parental response to the use of GS for their newborn babies. METHODS: 23 of...

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Detalles Bibliográficos
Autores principales: Berrios, Courtney, Koertje, Catherine, Noel-MacDonnell, Janelle, Soden, Sarah, Lantos, John
Formato: Online Artículo Texto
Lenguaje:English
Publicado: 2019
Materias:
Article
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7004847/
https://www.ncbi.nlm.nih.gov/pubmed/31467447
http://dx.doi.org/10.1038/s41436-019-0644-5

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7004847/
https://www.ncbi.nlm.nih.gov/pubmed/31467447
http://dx.doi.org/10.1038/s41436-019-0644-5

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