Standardised clinical data from patients with primary ciliary dyskinesia: FOLLOW-PCD

Clinical data on primary ciliary dyskinesia (PCD) are limited, heterogeneous and mostly derived from retrospective chart reviews, leading to missing data and unreliable symptoms and results of physical examinations. We need standardised prospective data collection to study phenotypes, severity and p...

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Detalles Bibliográficos
Autores principales: Goutaki, Myrofora, Papon, Jean-François, Boon, Mieke, Casaulta, Carmen, Eber, Ernst, Escudier, Estelle, Halbeisen, Florian S., Harris, Amanda, Hogg, Claire, Honore, Isabelle, Jung, Andreas, Karadag, Bulent, Koerner-Rettberg, Cordula, Legendre, Marie, Maitre, Bernard, Nielsen, Kim G., Rubbo, Bruna, Rumman, Nisreen, Schofield, Lynne, Shoemark, Amelia, Thouvenin, Guillaume, Willkins, Hannah, Lucas, Jane S., Kuehni, Claudia E.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: European Respiratory Society 2020
Materias:
Original Articles
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7008138/
https://www.ncbi.nlm.nih.gov/pubmed/32055632
http://dx.doi.org/10.1183/23120541.00237-2019

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7008138/
https://www.ncbi.nlm.nih.gov/pubmed/32055632
http://dx.doi.org/10.1183/23120541.00237-2019

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