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Social isolation and exclusion: the parents' experience of caring for children with rare neurodevelopmental disorders
Purpose: The experiences of parents caring for the complex care needs of children with rare neurodevelopmental disorders are not well understood. Parents struggle to meet their children’s medical, behavioural, and social needs within and across health, social, and family systems. The purpose of this...
| Autores principales: | , |
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| Formato: | Online Artículo Texto |
| Lenguaje: | English |
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Taylor & Francis
2020
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| Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7034477/ https://www.ncbi.nlm.nih.gov/pubmed/32048917 http://dx.doi.org/10.1080/17482631.2020.1725362 |