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Palliative care in 9 children with neurodegeneration with brain iron accumulation

AIM: Evaluation of pediatric palliative home care of families with children suffering from neurodegeneration with brain iron accumulation (NBIA) and their parents. MATERIAL AND METHODS: The children were treated at home by a multidisciplinary team. Densitometry was used to evaluate the condition of...

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Detalles Bibliográficos
Autores principales: Dangel, Tomasz, Kmieć, Tomasz, Januszaniec, Artur, Ważny, Barbara
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Springer International Publishing 2019
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7040054/
https://www.ncbi.nlm.nih.gov/pubmed/31758347
http://dx.doi.org/10.1007/s10072-019-04099-5