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Palliative care in 9 children with neurodegeneration with brain iron accumulation
AIM: Evaluation of pediatric palliative home care of families with children suffering from neurodegeneration with brain iron accumulation (NBIA) and their parents. MATERIAL AND METHODS: The children were treated at home by a multidisciplinary team. Densitometry was used to evaluate the condition of...
Autores principales: | Dangel, Tomasz, Kmieć, Tomasz, Januszaniec, Artur, Ważny, Barbara |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Springer International Publishing
2019
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7040054/ https://www.ncbi.nlm.nih.gov/pubmed/31758347 http://dx.doi.org/10.1007/s10072-019-04099-5 |
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