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Lived Experiences of Fragile X Syndrome Caregivers: A Scoping Review of Qualitative Studies

Fragile X Syndrome (FXS) is the most common x-linked monogenic cause of Intellectual Disability (ID) and Autism Spectrum Disorder (ASD). Taking care of children with ID is challenging and overwhelming due to the multiple facets of caregiving. This scoping review aimed at summarizing the qualitative...

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Detalles Bibliográficos
Autores principales: Kamga, Karen Kengne, De Vries, Jantina, Nguefack, Seraphin, Munung, Syntia Nchangwi, Wonkam, Ambroise
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Frontiers Media S.A. 2020
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7056838/
https://www.ncbi.nlm.nih.gov/pubmed/32174884
http://dx.doi.org/10.3389/fneur.2020.00128