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Lived Experiences of Fragile X Syndrome Caregivers: A Scoping Review of Qualitative Studies
Fragile X Syndrome (FXS) is the most common x-linked monogenic cause of Intellectual Disability (ID) and Autism Spectrum Disorder (ASD). Taking care of children with ID is challenging and overwhelming due to the multiple facets of caregiving. This scoping review aimed at summarizing the qualitative...
Autores principales: | Kamga, Karen Kengne, De Vries, Jantina, Nguefack, Seraphin, Munung, Syntia Nchangwi, Wonkam, Ambroise |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Frontiers Media S.A.
2020
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7056838/ https://www.ncbi.nlm.nih.gov/pubmed/32174884 http://dx.doi.org/10.3389/fneur.2020.00128 |
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