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What motivates patients and caregivers to engage in health research and how engagement affects their lives: Qualitative survey findings

BACKGROUND: US research organizations increasingly are supporting patient and stakeholder engagement in health research with a goal of producing more useful, relevant and patient‐centered evidence better aligned with real‐world clinical needs. The Patient‐Centered Outcomes Research Institute (PCORI)...

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Detalles Bibliográficos
Autores principales: Hemphill, Rachel, Forsythe, Laura P., Heckert, Andrea L., Amolegbe, Andrew, Maurer, Maureen, Carman, Kristin L., Mangrum, Rikki, Stewart, Lisa, Fearon, Ninma, Esmail, Laura
Formato: Online Artículo Texto
Lenguaje:English
Publicado: John Wiley and Sons Inc. 2019
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7104645/
https://www.ncbi.nlm.nih.gov/pubmed/31800154
http://dx.doi.org/10.1111/hex.12979