Health-related quality of life in porphyria cutanea tarda: a cross-sectional registry based study

BACKGROUND: Porphyria cutanea tarda (PCT) is a rare, photosensitive disease characterized by skin fragility and blistering on sun-exposed areas. There is little previous research on how this condition affects health-related quality of life (HRQoL) and to the best of our knowledge this is the largest...

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Detalles Bibliográficos
Autores principales: Andersen, Janice, Thomsen, Janne, Enes, Åshild Rostad, Sandberg, Sverre, Aarsand, Aasne K.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2020
Materias:
Research
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7106654/
https://www.ncbi.nlm.nih.gov/pubmed/32228630
http://dx.doi.org/10.1186/s12955-020-01328-w

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7106654/
https://www.ncbi.nlm.nih.gov/pubmed/32228630
http://dx.doi.org/10.1186/s12955-020-01328-w

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