The PKU & ME study: A qualitative exploration, through co-creative sessions, of attitudes and experience of the disease among adults with phenylketonuria in Italy

BACKGROUND: Phenylketonuria (PKU) is a hereditary metabolic disease that can be diagnosed and successfully treated from birth with a lifelong phenylalanine-restricted dietary regimen. However, optimal adherence to diet remains an issue and often progressively decreases after adolescence. The study a...

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Detalles Bibliográficos
Autores principales: Borghi, Lidia, Moreschi, Carlotta, Toscano, Alessandra, Comber, Peter, Vegni, Elena
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Elsevier 2020
Materias:
Research Paper
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7125347/
https://www.ncbi.nlm.nih.gov/pubmed/32257816
http://dx.doi.org/10.1016/j.ymgmr.2020.100585

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7125347/
https://www.ncbi.nlm.nih.gov/pubmed/32257816
http://dx.doi.org/10.1016/j.ymgmr.2020.100585

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