Information and Emotional Support Needs of Families Whose Infant Was Diagnosed With SCID Through Newborn Screening

Background: Now that severe combined immune deficiency (SCID) has been added to newborn screening panels in all 50 states in the U.S., there is a need to develop and disseminate well-designed educational materials to parents who need information to make informed decisions about treatment and care fo...

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Detalles Bibliográficos
Autores principales: Raspa, Melissa, Lynch, Molly, Squiers, Linda, Gwaltney, Angela, Porter, Katherine, Peay, Holly, Huston, Alissa, Fitzek, Brian, Boyle, John G.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Frontiers Media S.A. 2020
Materias:
Immunology
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7218061/
https://www.ncbi.nlm.nih.gov/pubmed/32435251
http://dx.doi.org/10.3389/fimmu.2020.00885

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7218061/
https://www.ncbi.nlm.nih.gov/pubmed/32435251
http://dx.doi.org/10.3389/fimmu.2020.00885

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