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Growing up with Fragile X Syndrome: Concerns and Care Needs of Young Adult Patients and Their Parents
Little is known about care needs of young adults with Fragile X Syndrome (FXS). Patient-driven information is needed to improve understanding and support of young adults with FXS. A qualitative study was performed in 5 young adult patients (aged 18–30), and 33 parents of young adults. Concerns and c...
Autores principales: | , , , , , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Springer US
2019
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7261272/ https://www.ncbi.nlm.nih.gov/pubmed/30879259 http://dx.doi.org/10.1007/s10803-019-03973-7 |