Ethical, Legal, and Social Issues Related to the Inclusion of Individuals With Intellectual Disabilities in Electronic Health Record Research: Scoping Review

BACKGROUND: Data from electronic health records (EHRs) are increasingly used in the field of genetic research to further precision medicine initiatives. However, many of these efforts exclude individuals with intellectual disabilities, which often stem from genetic conditions. To include this import...

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Detalles Bibliográficos
Autores principales: Raspa, Melissa, Moultrie, Rebecca, Wagner, Laura, Edwards, Anne, Andrews, Sara, Frisch, Mary Katherine, Turner-Brown, Lauren, Wheeler, Anne
Formato: Online Artículo Texto
Lenguaje:English
Publicado: JMIR Publications 2020
Materias:
Review
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7273235/
https://www.ncbi.nlm.nih.gov/pubmed/32436848
http://dx.doi.org/10.2196/16734

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7273235/
https://www.ncbi.nlm.nih.gov/pubmed/32436848
http://dx.doi.org/10.2196/16734

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