Integrating stakeholder feedback in translational genomics research: An ethnographic analysis of a study protocol’s evolution

PURPOSE: This study describes challenges faced while incorporating sometimes conflicting stakeholder feedback into study design and development of patient-facing materials for a translational genomics study aiming to reduce health disparities among diverse populations. METHODS: We conducted an ethno...

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Detalles Bibliográficos
Autores principales: Kraft, Stephanie A., McMullen, Carmit, Lindberg, Nangel M., Bui, David, Shipman, Kelly, Anderson, Katherine, Joseph, Galen, Duenas, Devan M., Porter, Kathryn M., Kauffman, Tia L., Koomas, Alyssa, Ransom, Chelese L., Jackson, Paige, Goddard, Katrina A.B., Wilfond, Benjamin S., Lee, Sandra Soo-Jin
Formato: Online Artículo Texto
Lenguaje:English
Publicado: 2020
Materias:
Article
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7275883/
https://www.ncbi.nlm.nih.gov/pubmed/32089547
http://dx.doi.org/10.1038/s41436-020-0763-z

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7275883/
https://www.ncbi.nlm.nih.gov/pubmed/32089547
http://dx.doi.org/10.1038/s41436-020-0763-z

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