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Integrating stakeholder feedback in translational genomics research: An ethnographic analysis of a study protocol’s evolution
PURPOSE: This study describes challenges faced while incorporating sometimes conflicting stakeholder feedback into study design and development of patient-facing materials for a translational genomics study aiming to reduce health disparities among diverse populations. METHODS: We conducted an ethno...
Autores principales: | Kraft, Stephanie A., McMullen, Carmit, Lindberg, Nangel M., Bui, David, Shipman, Kelly, Anderson, Katherine, Joseph, Galen, Duenas, Devan M., Porter, Kathryn M., Kauffman, Tia L., Koomas, Alyssa, Ransom, Chelese L., Jackson, Paige, Goddard, Katrina A.B., Wilfond, Benjamin S., Lee, Sandra Soo-Jin |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
2020
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7275883/ https://www.ncbi.nlm.nih.gov/pubmed/32089547 http://dx.doi.org/10.1038/s41436-020-0763-z |
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