Development of the Thalassaemia Adult Life Index (ThALI)

BACKGROUND: Beta Thalassaemia Major (βTM) is a chronic genetic illness whereby the challenges faced by patients exposes them to increased risk of psychosocial issues. Despite this, a disease-specific tool to measure the impact of this illness on adult patients has yet to be developed. METHODS: In co...

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Detalles Bibliográficos
Autores principales: Kantaris, Xenya, Shevlin, Mark, Porter, John, Myers, Lynn
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2020
Materias:
Research
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7291498/
https://www.ncbi.nlm.nih.gov/pubmed/32532297
http://dx.doi.org/10.1186/s12955-020-01437-6

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7291498/
https://www.ncbi.nlm.nih.gov/pubmed/32532297
http://dx.doi.org/10.1186/s12955-020-01437-6

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