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Development of the Thalassaemia Adult Life Index (ThALI)
BACKGROUND: Beta Thalassaemia Major (βTM) is a chronic genetic illness whereby the challenges faced by patients exposes them to increased risk of psychosocial issues. Despite this, a disease-specific tool to measure the impact of this illness on adult patients has yet to be developed. METHODS: In co...
| Autores principales: | , , , |
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| Formato: | Online Artículo Texto |
| Lenguaje: | English |
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BioMed Central
2020
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| Materias: | |
| Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7291498/ https://www.ncbi.nlm.nih.gov/pubmed/32532297 http://dx.doi.org/10.1186/s12955-020-01437-6 |