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Data driven decision making to characterize clinical personas of parents of children with cystic fibrosis: a mixed methods study

BACKGROUND: Beginning at a young age, children with cystic fibrosis (CF) embark on demanding care regimens that pose challenges to parents. We examined the extent to which clinical, demographic and psychosocial features inform patterns of adherence to pulmonary therapies and how these patterns can b...

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Detalles Bibliográficos
Autores principales: Szczesniak, Rhonda D., Pestian, Teresa, Duan, Leo L., Li, Dan, Stamper, Sophia, Ferrara, Brycen, Kramer, Elizabeth, Clancy, John P., Grossoehme, Daniel
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2020
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7301999/
https://www.ncbi.nlm.nih.gov/pubmed/32552880
http://dx.doi.org/10.1186/s12890-020-01202-x