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Data driven decision making to characterize clinical personas of parents of children with cystic fibrosis: a mixed methods study
BACKGROUND: Beginning at a young age, children with cystic fibrosis (CF) embark on demanding care regimens that pose challenges to parents. We examined the extent to which clinical, demographic and psychosocial features inform patterns of adherence to pulmonary therapies and how these patterns can b...
Autores principales: | Szczesniak, Rhonda D., Pestian, Teresa, Duan, Leo L., Li, Dan, Stamper, Sophia, Ferrara, Brycen, Kramer, Elizabeth, Clancy, John P., Grossoehme, Daniel |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
BioMed Central
2020
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7301999/ https://www.ncbi.nlm.nih.gov/pubmed/32552880 http://dx.doi.org/10.1186/s12890-020-01202-x |
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