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Raising rare disease awareness using red flags, role play simulation and patient educators: results of a novel educational workshop on Raynaud phenomenon and systemic sclerosis

BACKGROUND: As lack of awareness of rare diseases (RDs) among healthcare professionals results in delayed diagnoses, there is a need for a more efficient approach to RD training during academic education. We designed an experimental workshop that used role-play simulation with patient educators and...

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Detalles Bibliográficos
Autores principales: Sanges, S., Farhat, M.-M., Assaraf, M., Galland, J., Rivière, E., Roubille, C., Lambert, M., Yelnik, C., Maillard, H., Sobanski, V., Lefèvre, G., Launay, D., Morell-Dubois, S., Hachulla, E.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2020
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7310378/
https://www.ncbi.nlm.nih.gov/pubmed/32576213
http://dx.doi.org/10.1186/s13023-020-01439-z