An Evaluation of Three Ways of Communicating Carrier Status Results to the Parents of Children in a Neonatal Sickle Cell Screening Programme

Aim: Sickle cell disease (SCD) is the most frequent monogenic disease worldwide; ~5–7% of the world population carry a hemoglobin disorder trait. In the US, one in every 1,941 newborns has SCD, whereas one in every 3,000 newborns in France is affected - resulting in 385 new cases and 5,883 newly ide...

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Detalles Bibliográficos
Autores principales: Rémus, Christelle, Stanislas, Aurélie, Bouazza, Naïm, Gauthereau, Valérie, Polak, Michel, Blanche, Stéphane, Niakaté, Assa, Gluckman, Eliane, Tréluyer, Jean-Marc, Munnich, Arnold, Girot, Robert, Cavazzana, Marina
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Frontiers Media S.A. 2020
Materias:
Pediatrics
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7318296/
https://www.ncbi.nlm.nih.gov/pubmed/32637386
http://dx.doi.org/10.3389/fped.2020.00300

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7318296/
https://www.ncbi.nlm.nih.gov/pubmed/32637386
http://dx.doi.org/10.3389/fped.2020.00300

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