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Patient knowledge, experiences and preferences regarding retinoblastoma and research: A qualitative study

BACKGROUND: We launched a patient engagement strategy to facilitate research involvement of the retinoblastoma (childhood eye cancer) community in Canada. To inform our strategy, we aimed to uncover the experiences with retinoblastoma, knowledge of retinoblastoma and research engagement among retino...

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Detalles Bibliográficos
Autores principales: Moses, Catherine, Flegg, Kaitlyn, Dimaras, Helen
Formato: Online Artículo Texto
Lenguaje:English
Publicado: John Wiley and Sons Inc. 2020
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7321723/
https://www.ncbi.nlm.nih.gov/pubmed/32113195
http://dx.doi.org/10.1111/hex.13043