Challenges Affecting Access to Health and Social Care Resources and Time Management among Parents of Children with Rett Syndrome: A Qualitative Case Study

Rare diseases face serious sustainability challenges regarding the distribution of resources geared at health and social needs. Our aim was to describe the barriers experienced by parents of children with Rett Syndrome for accessing care resources. A qualitative case study was conducted among 31 par...

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Detalles Bibliográficos
Autores principales: Güeita-Rodriguez, Javier, Famoso-Pérez, Pilar, Salom-Moreno, Jaime, Carrasco-Garrido, Pilar, Pérez-Corrales, Jorge, Palacios-Ceña, Domingo
Formato: Online Artículo Texto
Lenguaje:English
Publicado: MDPI 2020
Materias:
Article
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7345745/
https://www.ncbi.nlm.nih.gov/pubmed/32575920
http://dx.doi.org/10.3390/ijerph17124466

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7345745/
https://www.ncbi.nlm.nih.gov/pubmed/32575920
http://dx.doi.org/10.3390/ijerph17124466

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