Cargando…
Profiling trial burden and patients’ attitudes to improve clinical research in epidermolysis bullosa
BACKGROUND: Epidermolysis bullosa (EB) comprises inherited mechanobullous dermatoses with considerable morbidity and mortality. While current treatments are symptomatic, a growing number of innovative therapeutic compounds are evaluated in clinical trials. Clinical research in rare diseases like EB,...
Autores principales: | , , , , , , |
---|---|
Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
BioMed Central
2020
|
Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7350741/ https://www.ncbi.nlm.nih.gov/pubmed/32650809 http://dx.doi.org/10.1186/s13023-020-01443-3 |